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001 ocm74523237;

003 OCoLC;

005 20141211230749.0;

008 060705s2007 enk b 001 0 eng ;

010 a| 2007277946;

015 a| GBA6898872| bnb;

016 7 a| 1013083932| DNLM;

016 7 a| 0135839482| Uk;

020 a| 0521856620 (hardback);

020 a| 9780521856621 (hardback);

029 0 a| NLMb| 101308393;

029 1 a| YDXCPb| 100453643;

035 a| (Sirsi) o74523237;

035 a| (OCoLC)74523237;

042 a| nlmcopyc;

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050 00 a| QH438.7b| .E833 2007;

060 00 a| 2007 F-888;

060 10 a| QU 23b| E84 2007;

082 04 a| 174.2960422| 22;

245 04 a| The ethics and governance of human genetic databases :b| European perspectives /c| edited by Matti Häyry [and others].;

260 a| Cambridge ;a| New York :b| Cambridge University Press,c| 2007.;

300 a| xi, 283 pages ;c| 24 cm.;

336 a| text2| rdacontent;

337 a| unmediated2| rdamedia;

338 a| volume2| rdacarrier;

490 1 a| Cambridge law, medicine, and ethics;

504 a| Includes bibliographical references (p. 257-275) and index.;

505 0 a| Introduction : some lessons of ELSAGEN / Vilhjálmur Árnason -- On human genetic databases / Gardar Árnason -- American principles, European values and the mezzanine rules of ethical genetic databanking / Matti Häyry and Tuija Takala -- The languages of privacy / Salvör Nordal -- A sociological perspective : public perceptions of privacy and their trust in institutions managing and regulating genetic databases / Kjell E. Eriksson ... [et al.] -- Estonia / Külliki Korts -- Iceland / Margrét Lilja Gudmundsdóttir and Salvör Nordal -- Sweden / Kjell E. Eriksson -- United Kingdom / Sue Weldon -- Public discourses on human genetic databases / Piia Tammpuu -- Regulating human genetic databases in Europe / Jane Kaye -- Consent and population genetic databases : a comparative analysis of the law in Iceland, Sweden, Estonia and the UK / Hördur Helgi Helgason -- Third parties' interests in population genetic databases : some comparative notes regarding the law in Estonia, Iceland, Sweden and the UK / Lotta Wendel -- Transforming principles of biolaw into national legislation : comparison of four national laws in three aspects / Ants Nõmper -- Governance of population genetic databases : a comparative analysis of legal regulation in Estonia, Iceland, Sweden and the UK / Susan M.C. Gibbons -- The legal jigsaw governing population genetic databases : concluding remarks on the ELSAGEN legal findings / Jane Kaye -- Introduction : ethical questions / Vilhjálmur Árnason -- Pursuing equality : questions of social justice and population genomics / Sarah Wilson and Ruth Chadwick -- Benefit-sharing and biobanks / Kadri Simm -- Genetic discrimination / Lena Halldenius -- Privacy / Salvör Nordal -- Trust / Margit Sutrop -- Informed consent and human genetic database research / Sigurdur Kristinsson and Vilhjálmur Árnason -- The impact of biobanks on ethical frameworks / Ruth Chadwick and Mark Cutter -- Genetics, rhetoric and policy / Gardar Árnason -- Genetic databases and governance / Rainer Kattel -- Bioethical analysis of the results : how well do laws and regulations address people's concerns? / Matti Häyry and Tuija Takala.;

650 0 a| Human geneticsx| Databasesx| Moral and ethical aspects.=| ^A1411;

700 1 a| Häyry, Matti.=| ^A697671;

830 0 a| Cambridge law, medicine, and ethics.=| ^A757133;

856 41 3| Table of contents onlyu| http://www.loc.gov/catdir/enhancements/fy0729/2007277946-t.html;

856 42 3| Publisher descriptionu| http://www.loc.gov/catdir/enhancements/fy0729/2007277946-d.html;

856 42 3| Contributor biographical informationu| http://www.loc.gov/catdir/enhancements/fy0729/2007277946-b.html;

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999 a| QH438.7 .E833 2007w| LCc| 1i| 30372014136292d| 11/29/2007l| JGESm| JOYNERp| $95.00r| Ys| Yt| JGESBKu| 10/9/2007x| BOOKz| JSTACKSo| .STAFF. 0;

The ethics and governance of human genetic databases : European perspectives / edited by Matti Häyry [and others].

Other author	Häyry, Matti.
Format	Book
Publication Info	Cambridge ; New York : Cambridge University Press, 2007.
Description	xi, 283 pages ; 24 cm.
Supplemental Content	Table of contents only
Supplemental Content	Publisher description
Supplemental Content	Contributor biographical information
Subjects	Human genetics--Databases. --Moral and ethical aspects.

Series	Cambridge law, medicine, and ethics Cambridge law, medicine, and ethics. ^A757133
Contents	Introduction : some lessons of ELSAGEN / Vilhjálmur Árnason -- On human genetic databases / Gardar Árnason -- American principles, European values and the mezzanine rules of ethical genetic databanking / Matti Häyry and Tuija Takala -- The languages of privacy / Salvör Nordal -- A sociological perspective : public perceptions of privacy and their trust in institutions managing and regulating genetic databases / Kjell E. Eriksson ... [et al.] -- Estonia / Külliki Korts -- Iceland / Margrét Lilja Gudmundsdóttir and Salvör Nordal -- Sweden / Kjell E. Eriksson -- United Kingdom / Sue Weldon -- Public discourses on human genetic databases / Piia Tammpuu -- Regulating human genetic databases in Europe / Jane Kaye -- Consent and population genetic databases : a comparative analysis of the law in Iceland, Sweden, Estonia and the UK / Hördur Helgi Helgason -- Third parties' interests in population genetic databases : some comparative notes regarding the law in Estonia, Iceland, Sweden and the UK / Lotta Wendel -- Transforming principles of biolaw into national legislation : comparison of four national laws in three aspects / Ants Nõmper -- Governance of population genetic databases : a comparative analysis of legal regulation in Estonia, Iceland, Sweden and the UK / Susan M.C. Gibbons -- The legal jigsaw governing population genetic databases : concluding remarks on the ELSAGEN legal findings / Jane Kaye -- Introduction : ethical questions / Vilhjálmur Árnason -- Pursuing equality : questions of social justice and population genomics / Sarah Wilson and Ruth Chadwick -- Benefit-sharing and biobanks / Kadri Simm -- Genetic discrimination / Lena Halldenius -- Privacy / Salvör Nordal -- Trust / Margit Sutrop -- Informed consent and human genetic database research / Sigurdur Kristinsson and Vilhjálmur Árnason -- The impact of biobanks on ethical frameworks / Ruth Chadwick and Mark Cutter -- Genetics, rhetoric and policy / Gardar Árnason -- Genetic databases and governance / Rainer Kattel -- Bioethical analysis of the results : how well do laws and regulations address people's concerns? / Matti Häyry and Tuija Takala.
Bibliography note	Includes bibliographical references (p. 257-275) and index.
LCCN	2007277946
ISBN	0521856620 (hardback)
ISBN	9780521856621 (hardback)

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Joyner	General Stacks	QH438.7 .E833 2007	✔ Available	Place Hold

The ethics and governance of human genetic databases : European perspectives / edited by Matti Häyry [and others].

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