Tools

LEADER 04419cam 2200505 a 4500

001 ocm82673721;

003 OCoLC;

005 20141211230750.0;

008 061117s2006 ne b 000 0 eng c;

010 a| 2007271360;

016 7 a| 1012957482| DNLM;

016 7 a| B07000192| bccb;

020 a| 9789004155596 (alk. paper);

020 a| 9004155597 (alk. paper);

029 1 a| NLMb| 101295748;

029 1 a| YDXCPb| 2486629;

029 1 a| NLGGCb| 298615800;

029 1 a| IG#b| 9789004155596;

035 a| (Sirsi) o82673721;

035 a| (OCoLC)82673721;

042 a| pcc;

049 a| EREE;

050 00 a| K3611.G46b| G484 2007;

060 00 a| 2007 C-815;

060 10 a| QU 58.5b| G33527 2007;

084 a| 44.022| bcl;

245 00 a| Genomics and public health :b| legal and socio-ethical perspectives /c| edited by Bartha Maria Knoppers.;

300 a| xi, 329 pages :b| illustrations ;c| 25 cm;

336 a| text2| rdacontent;

337 a| unmediated2| rdamedia;

338 a| volume2| rdacarrier;

504 a| Includes bibliographical references.;

505 0 a| pt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M. Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics - the public health perspective on genome-based knowledge and technologies / Angela Brand -- pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet ... [et al.] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin.;

650 0 a| Genetic screeningx| Law and legislation.=| ^A757152;

650 0 a| Genomics.=| ^A528942;

650 0 a| Genomicsx| Moral and ethical aspects.=| ^A528942;

650 0 a| Public health.=| ^A369;

700 1 a| Knoppers, Bartha Maria.=| ^A248536;

856 41 3| Table of contents onlyu| http://www.loc.gov/catdir/toc/fy0708/2007271360.html;

994 a| C0b| ERE;

596 a| 1;

998 a| 1271683;

999 a| K3611.G46 G484 2007w| LCc| 1i| 30372014136474d| 3/27/2009f| 2/25/2009g| 1l| JGESm| JOYNERp| $135.00r| Ys| Yt| JGESBKu| 10/9/2007x| BOOKz| JSTACKSo| .STAFF. 0;

Genomics and public health : legal and socio-ethical perspectives / edited by Bartha Maria Knoppers.

Other author	Knoppers, Bartha Maria.
Format	Book
Publication Info	Leiden ; Boston : Martinus Nijhoff, ©2007.
Description	xi, 329 pages : illustrations ; 25 cm
Supplemental Content	Table of contents only
Subjects	Genetic screening--Law and legislation. Genomics. Genomics--Moral and ethical aspects. Public health.

Contents	pt. I. Population screening : issues, realities and possibilities. Introduction : expansion of screening / J. Gerard Loeber ; Expansion of newborn screening : current achievements and new prospects / Bridget Wilcken ; Screening newborns for genetic susceptibility : what's the harm? / Nikki Kerruish ; Newborn screening expansion : Massachusetts research models encompass public health service responsibility / Anne Marie Comeau ; Carriers detected by neonatal screening : a clinical geneticist's view / Helena Kaariainen, Ilona Autti-Ramo ; Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France / Jean-Louis Dhondt ; Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States / Lainie Friedman Ross ; Introduction : newborn screening : storage and access for research / Ellen Wright Clayton ; The Danish newborn screening biobank in practice and research : revised biobank regulations / Bent Norgaard-Pedersen, David M. Hougaard ; Research and public health surveillance using newborn bloodspots in Canada / Denise Avard ; Implementation of population screening / Jane Halliday -- pt. II. Balancing interests in public health genomics. Introduction : of genomics and public health : building public "goods"? / Bartha Maria Knoppers ; Privacy issues in public health genomics / Mark Rothstein, Herbert F. Boehl ; Balancing private and public interests in policy / Darren Shickle ; Public opinion, consent and population genetic biobanks / Timothy Caulfield, Nola M. Ries ; Challenges for public health genomics - the public health perspective on genome-based knowledge and technologies / Angela Brand -- pt. III. Genomics and public health : current approaches and future perspectives. Introduction : the role of international stakeholders in genomics and public health / Andrea Boggio ; From genomic research to public health practice : international policy implications / Stuart Hogarth ; GRaPH Int : an international network for public health genomics / Alison Stewart, Mohamed Karmali, Ron Zimmern ; The role of international stakeholders patients as partners / Alastair Kent ; Genomics and modes of democratic dialogue : an analysis of two projects / Hubert Doucet ... [et al.] ; Meeting of minds : a European citizen's deliberation on emerging technologies / Marie-Helene Mouneyrat ; Developments in genomics : engaging young people / Caroline Hurren ; Interdisciplinary graduate training in public health genetics at the University of Washington / Melissa A. Austin.
Bibliography note	Includes bibliographical references.
LCCN	2007271360
ISBN	9789004155596 (alk. paper)
ISBN	9004155597 (alk. paper)

Availability

Library	Location	Call Number	Status	Item Actions
Joyner	General Stacks	K3611.G46 G484 2007	✔ Available	Place Hold

Genomics and public health : legal and socio-ethical perspectives / edited by Bartha Maria Knoppers.

Click here for more information about this title

Availability