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001 ocn690088075;

003 OCoLC;

005 20141212073820.0;

008 110316s2011 enka b 001 0 eng ;

010 a| 2011011621;

016 7 a| 1015565702| DNLM;

020 a| 9780195390384 (hardback : alk. paper);

020 a| 0195390385 (hardback : alk. paper);

029 1 a| NLMb| 101556570;

029 1 a| DEBBGb| BV037418854;

029 1 a| AU@b| 000046960629;

035 a| (Sirsi) o690088075;

035 a| (OCoLC)690088075;

042 a| pcc;

049 a| NEHH;

050 00 a| QH438.7b| .A26 2011;

060 10 a| WB 60;

082 00 a| 174.2/960422| 22;

245 00 a| Achieving justice in genomic translation :b| rethinking the pathway to benefit /c| edited by Wylie Burke [and others].;

300 a| x, 212 pages :b| illustrations ;c| 25 cm;

336 a| text2| rdacontent;

337 a| unmediated2| rdamedia;

338 a| volume2| rdacarrier;

504 a| Includes bibliographical references and index.;

505 0 a| Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.;

650 0 a| Human geneticsx| Researchx| Moral and ethical aspects.=| ^A1411;

650 0 a| Genomicsx| Researchx| Moral and ethical aspects.=| ^A528942;

650 0 a| Genetic screeningx| Moral and ethical aspects.=| ^A1012604;

650 12 a| Genetic Researchx| ethics.=| ^A939136;

650 22 a| Bioethical Issues.=| ^A935935;

650 22 a| Genetic Predisposition to Disease.=| ^A932601;

650 22 a| Genetic Testingx| ethics.=| ^A1065880;

650 22 a| Translational Research, Biomedicalx| ethics=| ^A1065991;

700 1 a| Burke, Wylie.=| ^A886799;

949 a| WB 60 A178 2011h| HSL70i| 31740082719687o| hdjrp| $49.95;

994 a| C0b| NEH;

096 a| WB 60 A178 2011;

590 a| Laupus-WCP;

596 a| 4;

998 a| 2613266;

999 a| WB 60 A178 2011w| NLMc| 1i| 31740082719687d| 11/4/2011e| 10/28/2011l| HSLBKm| HSLp| $49.95r| Ys| Yt| HBKu| 10/27/2011x| BOOKz| HSTACKSo| .STAFF. hdjr;

Achieving justice in genomic translation : rethinking the pathway to benefit / edited by Wylie Burke [and others].

Other author	Burke, Wylie.
Format	Book
Publication Info	Oxford ; New York : Oxford University Press, ©2011.
Description	x, 212 pages : illustrations ; 25 cm
Subjects	Human genetics--Research. --Moral and ethical aspects. Genomics--Research. --Moral and ethical aspects. Genetic screening--Moral and ethical aspects. Genetic Research--ethics. Bioethical Issues. Genetic Predisposition to Disease. Genetic Testing--ethics. Translational Research, Biomedical--ethics.

Contents	Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.
Local note	Laupus-WCP
Bibliography note	Includes bibliographical references and index.
LCCN	2011011621
ISBN	9780195390384 (hardback : alk. paper)
ISBN	0195390385 (hardback : alk. paper)

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Library	Location	Call Number	Status	Item Actions
Laupus	Books - Stacks	WB 60 A178 2011	✔ Available	Place Hold

Achieving justice in genomic translation : rethinking the pathway to benefit / edited by Wylie Burke [and others].

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