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020 a| 9780195390384 (hardback : alk. paper);

020 a| 0195390385 (hardback : alk. paper);

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245 00 a| Achieving justice in genomic translationh| [electronic resource] :b| rethinking the pathway to benefit /c| edited by Wylie Burke ... [et al.].;

260 a| Oxford ;a| New York :b| Oxford University Press,;

300 a| x, 212 p. :b| ill. ;c| 25 cm.;

504 a| Includes bibliographical references and index.;

505 0 a| Making good on the promise of genetics : justice in translational science / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.;

506 a| Available only to authorized users.;

538 a| Mode of access: World Wide Web;

650 0 a| Human geneticsx| Researchx| Moral and ethical aspects.=| ^A1411;

650 0 a| Genomicsx| Researchx| Moral and ethical aspects.=| ^A528942;

650 0 a| Genetic screeningx| Moral and ethical aspects.=| ^A1012604;

650 12 a| Genetic Researchx| ethics.=| ^A939136;

650 22 a| Bioethical Issues.=| ^A935935;

650 22 a| Genetic Predisposition to Disease.=| ^A932601;

650 22 a| Genetic Testingx| ethics.=| ^A1065880;

650 22 a| Translational Research, Biomedicalx| ethics=| ^A1065991;

655 0 a| Electronic books.=| ^A491897;

700 1 a| Burke, Wylie.=| ^A886799;

856 40 z| Full text available from Ebook Central - Academic Completeu| https://ebookcentral.proquest.com/lib/eastcarolina/detail.action?docID=829360;

947 a| (OCoLC)ocn690088075;

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Achieving justice in genomic translation rethinking the pathway to benefit / edited by Wylie Burke ... [et al.].

Other author	Burke, Wylie.
Format	Electronic
Publication Info	Oxford ; New York : Oxford University Press,
Description	x, 212 p. : ill. ; 25 cm.
Supplemental Content	Full text available from Ebook Central - Academic Complete
Subjects	Human genetics--Research. --Moral and ethical aspects. Genomics--Research. --Moral and ethical aspects. Genetic screening--Moral and ethical aspects. Genetic Research--ethics. Bioethical Issues. Genetic Predisposition to Disease. Genetic Testing--ethics. Translational Research, Biomedical--ethics.

Contents	Making good on the promise of genetics : justice in translational science / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.
Bibliography note	Includes bibliographical references and index.
Access restriction	Available only to authorized users.
Technical details	Mode of access: World Wide Web
Genre/form	Electronic books.
LCCN	2011011621
ISBN	9780195390384 (hardback : alk. paper)
ISBN	0195390385 (hardback : alk. paper)

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Achieving justice in genomic translation rethinking the pathway to benefit / edited by Wylie Burke ... [et al.].

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