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016 7 a| 0145961192| Uk;

020 a| 9780754672555 (hardback : alk. paper);

020 a| 0754672557 (hardback : alk. paper);

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245 00 a| Ethical issues in governing biobanksh| [electronic resource] :b| global perspectives /c| edited by Bernice Elger ... [et al.].;

260 a| Aldershot, England ;a| Burlington, VT :b| Ashgate Pub. Ltd.,;

300 a| vi, 257 p. ;c| 24 cm.;

504 a| Includes bibliographical references and index.;

505 0 a| Biobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron -- Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman -- Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno -- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] -- Consent and use of samples / Bernice Elger -- Consent to research involving human biological samples obtained during medical care / Bernice Elger -- Collective consent / Agomoni Ganguli-Mitra -- Withdrawal of consent and destruction of samples / Bernice Elger -- Anonymization and coding / Bernice Elger -- Informing participants about research results / Andrea Boggio -- Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio -- Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio -- Benefit-sharing and remuneration / Agomoni Ganguli-Mitra -- Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio -- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron -- Biobanks and genomic research : what shape the future? / Alex Capron.;

506 a| Available only to authorized users.;

538 a| Mode of access: World Wide Web;

650 0 a| Human geneticsx| Databasesx| Moral and ethical aspects.=| ^A1411;

650 0 a| Human geneticsx| Databasesx| Law and legislation.=| ^A1411;

650 12 a| Genome, Human.=| ^A928843;

650 22 a| Confidentiality.=| ^A918353;

650 22 a| Databases, Geneticx| ethics.=| ^A941065;

650 22 a| Databases, Geneticx| legislation & jurisprudence.=| ^A1349847;

650 22 a| Genetic Researchx| ethics.=| ^A939136;

650 22 a| Genetics, Populationx| ethics.=| ^A918695;

655 0 a| Electronic books.=| ^A491897;

700 1 a| Elger, Bernice.?| UNAUTHORIZED;

856 40 z| Full text available from Ebook Central - Academic Completeu| https://ebookcentral.proquest.com/lib/eastcarolina/detail.action?docID=438280;

947 a| (OCoLC)223104423;

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Ethical issues in governing biobanks global perspectives / edited by Bernice Elger ... [et al.].

Other author	Elger, Bernice.
Format	Electronic
Publication Info	Aldershot, England ; Burlington, VT : Ashgate Pub. Ltd.,
Description	vi, 257 p. ; 24 cm.
Supplemental Content	Full text available from Ebook Central - Academic Complete
Subjects	Human genetics--Databases. --Moral and ethical aspects. Human genetics--Databases. --Law and legislation. Genome, Human. Confidentiality. Databases, Genetic--ethics. Databases, Genetic--legislation & jurisprudence. Genetic Research--ethics. Genetics, Population--ethics.

Contents	Biobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron -- Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman -- Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno -- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] -- Consent and use of samples / Bernice Elger -- Consent to research involving human biological samples obtained during medical care / Bernice Elger -- Collective consent / Agomoni Ganguli-Mitra -- Withdrawal of consent and destruction of samples / Bernice Elger -- Anonymization and coding / Bernice Elger -- Informing participants about research results / Andrea Boggio -- Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio -- Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio -- Benefit-sharing and remuneration / Agomoni Ganguli-Mitra -- Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio -- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron -- Biobanks and genomic research : what shape the future? / Alex Capron.
Bibliography note	Includes bibliographical references and index.
Access restriction	Available only to authorized users.
Technical details	Mode of access: World Wide Web
Genre/form	Electronic books.
LCCN	2008003427
ISBN	9780754672555 (hardback : alk. paper)
ISBN	0754672557 (hardback : alk. paper)

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Ethical issues in governing biobanks global perspectives / edited by Bernice Elger ... [et al.].

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