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016 7 a| 0152916382| Uk;

020 a| 9780521509916 (hardback : alk. paper);

020 a| 0521509912 (hardback : alk. paper);

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082 00 a| 362.196/042072| 22;

245 04 a| The governance of genetic informationh| [electronic resource] :b| who decides? /c| edited by Heather Widdows and Caroline Mullen.;

260 a| Cambridge, UK ;a| New York :b| Cambridge University Press,;

300 a| xi, 235 p. ;c| 24 cm.;

490 1 a| Cambridge law, medicine, and ethics;

504 a| Includes bibliographical references and index.;

505 00 t| The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Søren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches /r| Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.;

506 a| Available only to authorized users.;

538 a| Mode of access: World Wide Web;

650 0 a| Genetic screeningx| Moral and ethical aspects.=| ^A1012604;

650 0 a| Genetic screeningx| Government policy.=| ^A9737;

650 0 a| Privacy, Right of.=| ^A2196;

650 0 a| Medical recordsx| Access control.=| ^A119565;

650 12 a| Genetic Privacyx| ethics.=| ^A1205169;

650 22 a| Decision Makingx| ethics.=| ^A942023;

650 22 a| Genetic Privacyx| legislation & jurisprudence.=| ^A963039;

650 22 a| Public Policy.=| ^A918490;

655 0 a| Electronic books.=| ^A491897;

700 1 a| Widdows, Heather,d| 1972-=| ^A606850;

700 1 a| Mullen, Caroline.=| ^A1009442;

830 0 a| Cambridge law, medicine, and ethics.=| ^A757133;

856 40 z| Full text available from Ebook Central - Academic Completeu| https://ebookcentral.proquest.com/lib/eastcarolina/detail.action?docID=461094;

947 a| (OCoLC)ocn318871873;

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999 a| CLICK ON WEB ADDRESSw| ASISc| 1i| 4648472-3001l| MNETm| JMUSICr| Ys| Yt| MNESSBKu| 3/4/2017x| EBOOKz| JERESOURCE;

The governance of genetic information who decides? / edited by Heather Widdows and Caroline Mullen.

Other author	Widdows, Heather, 1972-
Other author	Mullen, Caroline.
Format	Electronic
Publication Info	Cambridge, UK ; New York : Cambridge University Press,
Description	xi, 235 p. ; 24 cm.
Supplemental Content	Full text available from Ebook Central - Academic Complete
Subjects	Genetic screening--Moral and ethical aspects. Genetic screening--Government policy. Privacy, Right of. Medical records--Access control. Genetic Privacy--ethics. Decision Making--ethics. Genetic Privacy--legislation & jurisprudence. Public Policy.

Series	Cambridge law, medicine, and ethics Cambridge law, medicine, and ethics. ^A757133
Contents	The medium and the message : tissue samples, genetic information, and data protection legislation / Neil C. Manson -- Me, myself, I : against narcissism in the governance of genetic information / Søren Holm -- Decisions, consent and expectations of the individual / Caroline Mullen -- Constructing communal models of governance : collectives of individuals or distinct ethical loci? / Heather Widdows -- Rights, responsibility and stewardship : beyond consent / Roger Brownsword -- Who decides what? : relational ethics, genetics and well-being / Sarah Wilson -- Involving publics in biobank governance : moving beyond existing approaches / Kathryn G. Hunter and Graeme T. Laurie -- Genetic information and public opinion / Andrew Edgar -- Harmonisation and standardisation in ethics and governance : conceptual and practical challenges / Ruth Chadwick and Heather Strange.
Bibliography note	Includes bibliographical references and index.
Access restriction	Available only to authorized users.
Technical details	Mode of access: World Wide Web
Genre/form	Electronic books.
LCCN	2009018067
ISBN	9780521509916 (hardback : alk. paper)
ISBN	0521509912 (hardback : alk. paper)

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The governance of genetic information who decides? / edited by Heather Widdows and Caroline Mullen.

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